Community of People Affected by TB Constituency Delegation to the Stop TB Partnership Board

Community of People Affected by TB Constituency Delegation to the Stop TB Partnership Board

Names	Organization	Country of Work
Carol Nawina	CITAM+	Zambia
Peter Ng’ola	Wote Youth Development Projects	Kenya
Olga Klymenko (Board Member)	TBpeople Ukraine	Ukraine
Thokozile Phiri-Nkhoma	Facilitators of Community Transformation (FACT)	Malawi
Abdulai Abubakarr Sesay	CISMAT	Sierra Leone
Albert Makone	Shiloah	Zimbabwe
Endalkachew Fekadu	Volunteer Health Services	Ethiopia
Fabrice Kotoko	L'Association des Anciens Patients Tuberculeux du Bénin	Benin
Kate O’Brien	We are TB	United States
Ksenia Shchenina	Freelance TB advocate/activist	Russian Federation
Maurine Murenga	TB Women	Kenya
Maxime Lunga	Club des Amis Damien	DRC
Mukuhwa Tanaka	Zvandiri	Zimbabwe
Mona Balani	Association of TB people India	India
Melecio Mayta	ASPAT PERU	Peru
Rhea Lobo	Bolo Didi	India

 

To reach the Constituency Focal Point (CFP) of this delegation, please contact: Denis Nzioka - nziokanzioka@gmail.com

 

Carol Nawina uses her personal experience of living with HIV and surviving TB to advocate for policy change at national, regional and international levels. At national level, Carol is the Chairperson of the Zambia TB (CS) Organizations Coalition (ZTOC). At regional level, she is a founder member and past president of the Africa Coalition on TB. At global level, she is a current member of the UNITAID Communities Delegation and The Union Community Advisory Panel (UCAP).

 

Peter Ngola Owiti is the director of Wote Youth Development Projects, a youth TB/HIV advocacy organization in Makueni, Kenya. Peter is passionate about advocacy on access to life saving TB drugs and human rights globally. He currently serves as a member of Coordinating Committee for Scientific Activities and Union Community Advisory Panel (UCAP). He is a core group member of TB Proof, an occupational health care workers organization that fights TB stigma.

 

 

Olga Klymenko became a passionate TB activist after having TB in 2015. Her book "My inner world. Confessions of a TB patient" was on sale in Ukraine and helped people with a TB and their families. Since 2018, with the support of the Global Fund and the All-Ukrainian Network of People Living with HIV, Olga has been leading TBpeople Ukraine, the national network of people affected by TB.

 

 

 

 

 

Thokozile Phiri-Nkhoma is a former Board Member of the Stop TB Partnership Coordinating Board representing affected community constituency. Thokozile is a TB-HIV activist from Malawi, working for an organization called FACT. She joined the Stop TB Partnership as a community representative on the new Diagnostics Working Group in 2010. She is also part of a number of regional and global organizations working on TB and public health.

 

 

 

 

 

 

Abdulai Abubakarr Sesay is a TB Survivor and Champion for advancing advocacy efforts around TB prevention, care and control. He more than 15 years of experience in TB advocacy and Health System Strengthening

 

Albert Makone is a global health advocate based in Zimbabwe. His areas of work include access to treatment for TB and HIV patients and equity in human development. He has international and country-level experience, advocating for community participation in health. Albert served as a Community Representative in the New TB Drugs Working Group of the Stop TB Partnership.

 

Endalkachew Fekadu is a pharmacist, DR-TB survivor, advocate, and founder of the Ethiopian Drug Information Network and Volunteer Health Services. With 15 years of experience in advocacy and policy engagement, he brings a diverse perspective on global health policy related to TB, HIV, and Malaria. His expertise spans Global Fund implementation, key populations prioritization, CRG assessment, health commodity market dynamics, regulatory issues, intellectual property, and supply chain management. He has also contributed to developing national, regional, and continental health strategies, with a focus on domestic financing, community rights, gender, and policy development. He also also actively participated in the UN Lancet Commission on TB, TB clinical trials advisory groups, Global Fund CCM, and STOP TB Partnership initiatives.

 

 

Fabrice Mahugnon Kotoko is a TB survivor from the Republic of Benin. Fabrice is an active advocate of TB affected community: he is the President of the Association of Former TB Patients of Benin (ASSAP-TB / BENIN) and a community representative at the CCM of Benin.

 

 

 

 

Kate O’Brien is a TB advocate from the USA, with a background in TV production and marketing. Kate is committed to increasing the resources, funding and focus that TB receives in the USA and around the world. Kate currently works for the National Tuberculosis Controllers Association in the US, providing community engagement & support through We Are TB, a USA TB survivor advocacy organization. Kate is also a member of TBPEOPLE, the global network of people affected by TB.

 

 

 

Ksenia Shchenina is a TB survivor, activist and feminist from Russia. Since 2011, after she completed the treatment, Ksenia has been protecting the rights of people affected by tuberculosis. In 2016, she was one of the cofounders of the TBPEOPLE network. She coauthored "TB and You", a book written by TB patients for TB patients. Ksenia believes that TB must be smashed in the root.

 

 

Maurine Murenga is a passionate advocate for health and rights of women and girls with a strong focus on gender and human rights. She is the coordinator of TB Women Global, a global network of female TB survivors in their diversity, fighting to end TB in our lifetime.

 

Maxime Lunga is a TB survivor and a passionate activist in the fight against TB. He is a National Secretary of Club des Amis Damien (CAD), an organization of former TB patients. He is a TB and community, rights and gender (CRG) expert and he has a great experience in TB community advocacy at the national, regional and global levels.